Tripped going up the stairs at Kaiser and broke my fall with my head! I'm okay, walked away with a Minnie concussion and possibly soft tissue damage in my neck and right shoulder. All I have to say as I get ready for an ill advised pre- planned trip to Oahu is; power through, you got this!
Sunday, February 18, 2018
Saturday, February 17, 2018
Just anotherday!
So here's the aftermath of my day yesterday. I fought with the stairs at Kaiser and lost lol. I tripped going up the stairs and my head broke my fall.
I'm okay just a minor concussion and possibly soft tissue neck damage. #nobigdeal #imfine #toofunny
Sunday, May 1, 2011
Picture This (night of 2/21/2010)
Try to imagine yourself at 26 years old; working, partying, traveling (etc.) long story short- (be prepared you will be eventually getting the whole story- can't say I didn't warn you)... And on a semi-predictable night with your current project (a.k.a. friend in need of guidance); only something's not right. There's a echo you are currently trying to ignore telling you that you should have stayed home. You take your second baby hit (insert assumption about a 'hit of what' here) decide that getting wasted is not on the agenda and decide to pass, now you're trying to figure out if you wanna go home or... when you get a pinpoint blast of INTENSE pain and instantly hear your most courageous self murmur "FUUUUUUUCK! Should have listened to that gut feeling, this shit's not right." Your last man on defense, your ace in the hole is now panicking. The Macguyver part of your psyche has been beaten. But with no health insurance, a highly ranked PO for a father, a relationship still mending with your mother, and having just started back to school again you instinctively know that from this moment nothing will ever be the same....
Fearing high hospital bills you wait to go to the hospital trying to tell yourself that this is nothing serious. You've had migraines since you were seven and while you know that's not what this is you justify the cavalier facade because you are no stranger to excruciating head pains. You now notice (belatedly) that you've been in pain for about a half hour and are now DRIPPING sweat as though you went running through the Sahara for your life while being 50 lbs overweight. But you're not, you are sitting in a climate controlled environment trying to convince yourself that you are fine, head hurting so bad it's bringing tears to your eyes and you are now drenched in your own unearned sweat.
As the hours go by you loose all sense of your left side without realizing it. Attempting to cap a water bottle while holding the cap in one hand and bottle in the other proves to be life's greatest mystery; you know that they go together that it SHOULD be a no brainer but you are now just sitting staring at the objects in each hand. In the time you were trying to figure out how to cap the bottle you lost the knowledge of what you were trying to do and why, now you sit staring at the cap and bottle and are not quite sure why you can't remember what they are, what they do, and how to get rid of them. You look up to explain your quandary only to find that you have to comically over enunciate ev-er-y-th-in-g in order to make somewhat recognizable sounds or grumlings. The cap has now falllen out of your left hand but you can't feel it, see it or process that there is anything there. You know that you should get up and try to shake off whatever 'this' is but now standing is life's ultimate wonder. However did you do that before? Now it hits, this is serious you need help.
Thinking you may just be lucky enough to sleep it better I took a nap and when I (miraculously-according to medical professionals) woke up attempted to stand up and fell face first "TIMMMBEERRR"epic fall and crack the upper right side of my head on the corner of the coffee table. At this point my friends weren't fucking around listening to me anymore, they carried me to the car, held me up when the put me in and buckled me up. Not conscious by the time we go.....
I got to the hospital to find that I had been suffering a stroke for the past eight to nine hours, and now could possibly die from it. It took two days for me to stabilize enough for brain surgery in which they drained 200ml of blood and repaired surface damage to my brain, not being able to get to the ruptured blood vessel (it was so far in,attempting to stop it would've caused more damage than leaving it active).
A malformed blood vessel in the right hemisphere of my brain had burst and in a blink of an eye I had become a 26 year old stroke survivor. It turns out that I had always had a weak blood vessel in my brain that we never knew about and after a lifetime of 'poking the bear', it bit back. While there was not enough toxin in my system to have realistically caused the stroke it definitely did not help, and now my life and myself have been irrevocably changed and this is my journey....
Thursday, April 7, 2011
October 23rd 2010
"...what do you do? You laugh. I'm not saying I don't cry but in between I laugh and I realize how silly it is to take anything too seriously. Plus, I look forward to a good cry. It feels pretty good."
Tuesday, April 5, 2011
October 19th 2010
On the bright side though I am learning some pretty important new lessons. And I didn't loose ALL the old ones... Just a few of the whoppers! Some that could prove vital for some of the people that mean the most to me. Well, more succinctly my dealings with them. Bittersweet but considerable book material.
I wish I wasn't soo damned needy though. I try to squash the feelings of loneliness and concentrate on the positives of more contemplative time but it doesn't quite stick... not yet anyway.
Sunday, April 3, 2011
November 5th 2010
One of the paramount lessons I have learned since February is that it is VITAL that those who have a place in your heart know it, and know exactly what their role is. People generally cooperate but you have to let them see your script.
3/7 starting from now...
Saturday, April 2, 2011
long road...
There is an amazingly humbling amount of people wanting to help, encourage and watch my journey cause it inspires and as grateful as I am for all the love and support I am still utterly alone in this. No one knows what it's like to constantly try to hide or make light of all my shortcomings, handicaps or challenges. You see that I found my words again but you have no idea the difficulty I have using them correctly, effectively and processing the words you throw at me. You see that I can still perform elementary math (most times) but have no idea that unless you tell me what function to perform I might as well have never seen a number before. I did not lose knowledge I just lost my problem solving, information processing and abstract thinking tools. It's like having all your money in a CD or IRA that you may NEVER be able to access.
I know that I don't have it in me to give up but it's terrifying to know that 80% of what I get back is a direct result of my work, dedication, and will to recover but the remaining 20 is up to nature, God, fate, the universe... not me. So as a defense mechanism I try to put on a 'recovered' face show only the strengths and none of the weaknesses (as much as possible) but it's bittersweet while people are less inclined to talk to me like a Make-A-Wish case that drools and has no real communication skills they also tend to expect more than I can deliver. My fault utterly and completely but for me it's a matter of pride and choosing the lesser of two evils. It just makes for a terrifyingly long solo journey. No one else can get me better, no one else can find my shortcomings and ways to heal them, no one else knows how it feels to have completely lost yourself, your identity to this event.
I used to bemoan the fact that I was always "just Chis" but now what I would give to be just plain old, one of the guys Chis again. I'm now either that young girl who had a stroke- poor thing, or I'm Chisa-did you know she had a stroke, or I'm the handicapped girl that's too much work to take out or take places. I get it and I am grateful for those who are still around, still enjoy my company but is this really all I am now???
Recovering takes up all my days and most of my mental and emotional energy but I am so fucking tired of being defined by this my life, the way people see me but most importantly how I see myself is completely immersed in this. And I am not even the same person on a base level, due to the location of my ruptured brain vessel the left hemisphere of my brain is now primary and overcompensating for my damaged right hemisphere... But being a right brained thinker for 26 years it's now as if I have stepped through the looking glass and turned around to view the room I was just in to find everything mirror-imaged, reversed. It's not my vision that has been mirror imaged but my perspective I see and react to EVERYTHING differently than I would have before the stroke and even more trippy I know it, recognize it but don't know which reaction to trust... The current gut reactions, opinions and feelings or how I know I WOULD HAVE felt, done or thought as my pre-stroke self. I guess ultimately I should be striving to reconcile and mesh the two halves to form a more complete version of myself. I just hope that I have the stamina for it and that my loved ones, my support system have not all been drained soo much that I really do end up alone.
Friday, April 1, 2011
4/7/2008
I can't rush this, I can't force my body, my brain to heal on my or your time-line if that was possible it'd be done by now. I look at myself everyday and fight the vision of me as a failure a burden a blip on the radar of those who love me but I can't ignore the very reflection of that in your eyes when you look at me; ignore the tone in your voice when you 'talk' to me. I have been half a step away from 'resetting' this lifetime since the beginning and getting the feeling that I'm a burden or an unwelcome obligation does nothing to help squelch the urge. Apparently I'm too contrary to give in, to give up but I sure let you make me feel like that would be the gracious thing of me... to just bow out gracefully and not bother anyone anymore.
4/10/2011
But when so SOOOOOOO much of it is instantaneously removed homage MUST be paid; done happily and dutifully... thank you.
Saturday, March 19, 2011
Baby Steps...
(like trying to navigate through a dense, murky fog). Instead of the 'phantom limb' phenomenon that often plagues amputees my subconcious defense mechanism was to block out the entire effected side making me think, feel and believe (until reminded) that my functioning right half was a complete body.
Once I got to acute rehab and in a wheelchair and days full of occupational, speech and physical therapy (think of it as a recovery boot-camp) I often forgot my left hand and with no sensation did not even realize it was there until it knocked over something, got trapped under me or stuck and crunched in the spokes of my wheelchair. My therapists went as far as to equip me with a lap tray attached to my wheelchair and tape a rolled up towel to the top of it that I was to rest my endangered limb on to help. Sadly enough while attempting to navigate or think of something other than my new task of maintaining eye contact with poor lefty I would often hear shouts in passing "where's your hand Chis?", "I can't see lefty so I KNOW you can't"; or just have a perceptive passerby pick up my arm themselves and take it out of harms way. Thank you.
Now a little over a year into my recovery I still sporadically need the use of my wheelchair and while I no longer need the lap tray or forget about my still struggling appendages I attempted to man my wheelchair using both my hands instead of propelling with my right hand and steering with my right foot; not ready for that AT ALL. lol, While I have some sensation back in my left side it is no where near 100% and without staring at my hand to make sure each grab and push was executed safely it is still more likely that I'll just get my hand crunched in the spokes of my damned wheelchair. True story. Last week I went to Trader Joe's with my mom and due to an uncooperative knee needed to use my wheelchair for the expedition. And this was when I decided to see if I could work my left hand and arm while my lower half was sulking and the only difference between then and now is that when my hand gets stuck in my wheelchair I now feel the damage I am unconsciously causing. It was hilarious, hand caught, wheelchair not moving because of the stuck digits and me hysterically laughing while simultaneously howling in pain; and my 4'10" Filipino mother scrambling trying to help while also valiantly attempting yet beautifully failing at trying not to laugh. Needless to say we put on quite a show and I maintain my belief that, that alone was the reason why the staff and customers alike were soo friendly and proactive in assisting us during that particular excursion.
Now I could let myself get discouraged because after a year I still cannot do something as simple as utilize a wheelchair the way it's traditionally designed to be used but that's exhausting and counter productive, so instead I embrace the laughter, appreciate the hilarity of the moment of discovery and recognize the baby steps I am still making.
Friday, March 18, 2011
Bad Day
I was compulsively independent for 26 years and now.... now I am humbled, blessed, grateful and... done. I'm fuckin done being the white elephant in the room everyone avoids talking about I cannot will not do this, alienate anymore loved ones. Being a young stroke survivor, telling my story, SURVIVING is not fucking worth it if at the end of EVERY SINGLE DAY at my heart of hearts I have to feel worthless, indebted, like a plague or unnecessary expense. What's the use? Who benefits? NO ONE. The number of those concerned loved ones will continue to dwindle, so who am I suffering for? Why post pone the inevitable? Why did I get through that? So I can die alone having exasperated the patience, stores of love and sheer energy of everyone I hold dear? You can say all you want that anyone worth having in my life won't mind, but at the end of the day everyone has a limit. Obligations get old it's human nature... it's inevitable. Lots of things are.
Monday, February 28, 2011
trying my best
It's been a year I know the cycles, I have tried letting my friends try to help and it took all my strength not to hit the 'reset' button on this lifetime so I know that I have to let myself feel this ride most of it out so I'm actually dealing with the good and bad of this seemingly never ending experience but I also know when to grit my teeth and RIP myself out of it, painful as it always is. But it's been a week, a week in which 3 clean loads of laundry occupy the empty 2/3 of my bed that he won't. A week that I have panted my way through daily grueling workouts trying to punish myself more than the loneliness more than my heartache does so maybe I can feel something else at the forefront of the pack. A week that my cat has not left my side because she knows somethings up, a week that the only time- literally the only time I can get out of bed is to punish myself at the gym then when I get home after my shower I get directly the fuck back in bed next to my clean laundry that I can't seem to muster the energy up to put away.
The funny fuckin thing... I'm not feeling sorry for myself, I don't begrudge this chapter even now while I try to find a way out of the belly of the beast, I'm just tired, so fuckin tired of every single thing being too exhausting, so draining. I know I will pull out of this, I know I have to pull myself out of it, I know that I will but this is me; right now trying my best from the belly of the beast, the pit of despair suffocating from loneliness attempting to refill my stores of energy, patience, resilience, and optimism so the cycle can start over again...
Sunday, February 27, 2011
new focus
I want to be able to pick up my niece again, carry things reliably with both my hands and most importantly give a PROPER hand job again, not the lazy might as well be giving head, one handed half assed hand job; the kind that men actually appreciate. Not that there's an immediate demand for that particular skill but I liked having that under my belt, in my arsenal... I take pride in my work, lol.
Saturday, February 26, 2011
how do i?
Friday, February 25, 2011
boundaries
With that also comes another first... boundaries, I have to make them clear or I am the only one suffering. They are everywhere and I can no longer afford to ignore them, not to mention I no longer have the inclination or patience to curb them. I mean from my space bubble to my feelings and over to my needs. It boils down to safety for me... everything is on an extremely delicate balance. Things I need really need are the only things I ask from others and that need stems from either a emotional, mental, or physical safety issue so when I get ignored, forgotten or judged upon those needs I no longer retreat back into myself unwilling to inconvenience anyon,e I have to now tactfully assert myself (no easy feat since I no longer have a damn filter either). This was all very uncomfortable for a long time and still is (in my more sensitive moments) but if I have to then I REALLY have to now and I must say that I'm becoming very proud of that. I'll no longer be a doormat to feel loved and appreciated, I still am. And now that I really have to ask for help (as hard as it is) I am no longer too proud to do so.
I'll admit that I still wait as long as possible to ask for said assistance more often than not compounding the problem(s) attempting to figure out a way to get it done solo but I can now admit when help is vital and proactively seek it... damn 'growing pains'.
Tuesday, February 22, 2011
life has no pause button...
I already feel worthless, going through each day fighting to get better and stay positive enough not to end this journey so I can tell my story and hopefully one day have someone stumble upon this blog and by reading my heart and thoughts feel less alone. I arrogantly assumed that getting better was to be the hardest part for me , but I forgot that life has no fucking pause button. The universe does not wait for you to catch up, things still pile on and the past is still waiting for resolution. I am completely overwhelmed and overburdening my innocent loved ones... but for how much longer? My stamina is rapidly fraying, I feel hollowed out, completely depleted and yet still expected to, still attempting to pull my weight, somehow reciprocate what I can to those who continue to stand by me and try not to expect anything in return.
But I am the only one on my journey, I am the only on that can make me better, I hold the key to my happiness I have the tools I just have to find then again but when does enough get to be enough? How much punishment does on endure before things start to look up? How many obstacles must I scale before the tide starts to turn and I can clear away some of the worries to do what I need to in order to fully recover? Will I ever fully recover? If I am destined to remain lonely in the midst of dozens of distracted, half-assed, well meaning, patience expiring loved ones I might as well quit while I still have that. Too bad I've never been a fucking quitter and I don't fucking have it in me to disappoint the ones who have rallied for me, I'm stubborn enough to suffer this and try to prove the nay-sayers wrong. I just don't know if what I have left will ultimately be enough.
I've had 26 years of life prior to this, filled with sexual abuse, mental abuse, abandonment, struggling to remain independent, working for everything I have done and acquired, becoming the best in challenging jobs, rising up in the face of adversity, heartbreak and enough mistakes for three people... They say the what doesn't kill you makes you stronger, I don't feel stronger right now I feel tired, old, vulnerable, damaged and fragile.
Sunday, February 20, 2011
5/30 4:14pm...
One thing my most recent speech therapist/ friend Marty said to me really hit home yesterday. I was talking, emotionally purging, and having much needed time with Shmo when I found myself outlining my cognitive difficulties for her. To me they seem obvious; when you suffer a trauma the world including yourself looks different to you, TO YOU... the rest of the world will not see the scenery the way you do, but they may not even notice certain differences in you. Marty told me that my greatest strength will be my Achilles heel; my ability to compensate- or more succinctly- my need to camouflage my deficiencies will not only allow for better communication and an accelerated recovery but also distract from areas that still need attention... counter productive character trait at best. But it suddenly dawned on me that Shmo has known, really known me for majority of my life and this applies even to her (dramatically less than with most people but still applicable) and it amazed me.
